使用基于证据的共同设计来开发混合交付的炼干预措施,旨在增加血友病患者对炼的信心
Stephanie Taylor1, Karen Barker2,3, David Stephensen4
1Oxford Haemophilia and Thrombosis Centre, Churchill Hospital, Oxford, UK.
概括
这项研究为血友病患者 (PWH) 制定了为期12周的炼计划,以提高他们的信心和身体活动. 该干预措施将渐进式运动与行为改变策略相结合,以提高身体素养,并鼓励PWH健康老龄化.
科学领域:
- 运动科学 运动科学
- 行为医学是一种行为医学.
- 血液学 血液学 血液学
背景情况:
- 由于治疗方法的改进,患有血友病 (PWH) 的患者的寿命越来越长.
- 由于关节损伤和对出血/疼痛的恐惧,PWH经常会减少身体活动 (PA).
- 需要采取干预措施,促进PWH的健康衰老和体育素养.
研究的目的:
- 开发一种运动和行为改变干预措施,旨在增强对PWH运动的信心.
- 解决身体活动的障碍,促进血友病患者健康老龄化.
主要方法:
- 利用医学研究理事会的四阶段框架进行复杂的干预开发.
- 进行了七个在线焦点小组,其中包括17名PWH和7名血友病理疗师.
- 采用了COM-B行为变化模型来为干预设计提供信息.
主要成果:
- 开发了一种混合12周的物理治疗师领导的渐进性炼计划.
- 干预包括 Pilates,高强度间歇训练 (HIIT),平衡练习和讨论会.
- 会议涵盖PA建议,运动的好处,以及衰老对PWH的影响.
结论:
- 与利益相关者 (PWH和理疗师) 共同设计确保了干预措施满足用户需求.
- 该干预成功地将增加PA与建立对炼的信心相结合.
- 行为变化理论指导了在PWH中加入增强物理素养的技术.
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