青少年基于网络的门户网站访问政策的指导原则:与信息管理员的采访
Bryan Sisk1,2, Alison L Antes1, Christine Bereitschaft2
1Bioethics Research Center, Department of Medicine, Washington University School of Medicine, St Louis, MO, United States.
JMIR pediatrics and parenting
|March 11, 2024
概括
信息学领导者制定了青少年患者门户访问的原则,平衡青少年隐私与安全和法律需求. 这些指导方针有助于为有效的青少年医疗保健管理量身定制政策.
科学领域:
- 医疗信息学 医疗信息学
- 青少年健康 青少年健康
- 患者门户网站 患者门户网站
背景情况:
- 基于网络的患者门户可以帮助青少年管理他们的健康和自主权.
- 为青少年制定门户访问政策需要平衡管理人员,患者和家长的竞争利益.
研究的目的:
- 评估信息管理人员对青少年医疗保健网络患者门户访问政策指导原则的观点.
- 确定为年轻患者创造有效和公平的门户访问的关键考虑因素.
主要方法:
- 这项研究涉及采访来自美国医院的信息管理人员,这些医院至少有50张专门的儿科病床.
- 对制定和实施青少年患者门户访问政策的指导原则进行了专题分析.
主要成果:
- 来自63家儿科医院的65名信息学领导者参加了会议,代表了美国多样化的医疗保健系统.
- 九个指导原则出现了,分为保密与护理需求的平衡,简单与细节性以及协作/倡导.
- 参与者强调在法律框架内优先考虑青少年的健康和安全,尽管他们对父母的角色和具体实施的看法有所不同.
结论:
- 信息管理人员为青少年患者门户访问政策提供了关键原则,重点是平衡机密性和实用性.
- 政策必须优先考虑青少年的健康和安全,遵守法律要求,机构决定实际实施.
- 机构和临床医生之间的共识对于加强与电子健康记录供应商和政策制定者的宣传至关重要.
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