癌症中心信息和支持服务和患者需求:参与行动研究研究
Helen P A Driessen1, Jan J V Busschbach2, Erna J Elfrink3
1Department of Psychiatry, Section of Medical Psychology and Psychotherapy, Erasmus Medical Center, Rotterdam, The Netherlands h.driessen@erasmusmc.nl.
像PATIO和IntermeZZo这样的瘤支持中心因提供关键信息和支持而受到患者及其家属的高度评价. 这些中心被视为癌症护理的组成部分,有效地满足患者的需求.
科学领域:
- 在瘤学瘤学.
- 患者支持服务服务.
- 医疗保健整合 医疗保健整合
背景情况:
- 瘤病患者及其家人需要明确的信息和支持性护理来导航他们的疾病轨迹.
- 信息和支持中心为满足这些需求提供非正式和正式的非医疗服务.
研究的目的:
- 评估信息和支持中心提供的服务是否满足访客的需求.
- 评估在附属医院接受治疗的瘤患者对这些中心的兴趣.
主要方法:
- 参与行动研究,涉及访客和住院患者的采访.
- 在三个时期收集数据,在测量之间进行服务调整.
- 评估患者信息中心瘤学 (PATIO) 和IntermeZZo.Zo.的服务.
主要成果:
- 采访了111名 (PATIO) 和123名 (IntermeZZo) 访客,分别是189名和149名患者.
- 参观者将放松,专业建议和同行支持列为参观的原因.
- 99.1%的访客报告的需求得到满足; 89.6%的患者认为中心是治疗的组成部分.
结论:
- 癌症患者及其亲属高度重视与医院相关的信息和支持中心.
- 需要进一步的研究,以便将这些中心有效地纳入荷兰医疗保健系统.
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