人首先:参与性社区方法对患者报告的结核病结果
Dulce Martín1, Pedro Barbosa1,2, João Pedro Ramos1,2
1Unidade de Investigação em Epidemiologia (EPI Unit), Instituto de Saúde Pública da Universidade do Porto, Porto, Portugal.
Breathe (Sheffield, England)
|March 14, 2024
概括
患者报告的结果 (PROs) 对于了解结核病 (TB) 经验至关重要. 整合PRO和社区参与改善了结核病治疗和以患者为中心的护理.
科学领域:
- 公共卫生 公共卫生
- 医疗保健服务研究 医疗服务研究
- 以患者为中心的护理
背景情况:
- 患者报告的结果 (PROs) 对于评估结核病 (TB) 影响超出临床措施至关重要.
- 传统的结核病结局定义往往忽视了结核病患者的生活经历.
- 专业人员可以弥合医疗保健系统和患者需求之间的差距,提供对健康素养,自我效能和福祉的见解.
研究的目的:
- 强调将PRO纳入结核病研究的重要性.
- 强调基于社区的参与式方法在结核病研究和干预设计中的作用.
- 倡导利益相关者之间加强合作,以改善结核病患者的治疗结果.
主要方法:
- 审查PROs在了解结核病影响中的作用.
- 讨论结核病研究中的参与性社区方法.
- 确定关键利益相关者及其在促进以患者为中心的结核病护理中的作用.
主要成果:
- PRO提供了关于非可观察结构的基本数据,丰富了对结核病诊断,治疗和研究终点的评估.
- 基于社区的参与性方法确保干预措施适合结核病患者的需求.
- 医疗保健专业人员,研究人员,患者和社区之间的合作是推动结核病治疗的关键.
结论:
- 将PRO和社区参与结核病研究带入结核病研究会导致更有效的治疗方案和更好的坚持.
- 通过PRO和社区投入,以患者为中心的护理对于最大限度地提高结核病患者的治疗结果至关重要.
- 需要进行跨合作的努力,以充分利用PROs来改善结核病研究和患者护理.
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