自闭症青少年和新兴成年人的有意义的社会包容和心理福祉:基于社区的混合方法研究协议
Darcy Jones McMaughan1, Casey Lewis1, Amy McGehee1
1Human Development and Family Science, Oklahoma State University, Stillwater, OK, United States.
JMIR research protocols
|March 14, 2024
概括
这项研究旨在定义自闭症个体的有意义的社会包容性,并探索其与心理健康的联系. 研究结果将为加强社会包容和支持自闭症患者的战略提供信息.
科学领域:
- 自闭症研究的研究.
- 心理健康和福祉.
- 社会包容性研究研究社会包容性研究
背景情况:
- 自闭症患者的精神疾病和自我伤害率很高,这表明对心理健康的威胁很大.
- 社会包容,定义为社区参与和人际关系,可以改善自闭症患者的心理健康和弹性.
- 有限的研究存在于社会包容整合社区参与和自闭症患者的关系,或其对他们的福祉的影响.
研究的目的:
- 为自闭症患者制定一个有意义的社会包容的定义.
- 研究有意义的社会包容与自闭症青少年和新兴成年人的心理健康之间的关系.
- 为提高社会包容性的战略提供信息,以支持自闭症患者的心理健康.
主要方法:
- 一个基于社区的,连续的混合方法设计,涉及三个阶段.
- 阶段1:与10名自闭症成人社区合作伙伴共同创建社会包容性定义和调查.
- 第二阶段:对200名参与者 (100名自闭症青少年/新兴成年人,100名照顾者) 进行调查,以检查社会包容和福祉预测因素.
- 第三阶段:通过合作伙伴调查评估社区参与的过程.
主要成果:
- 在2023年3月获得的伦理审批.
- 招募了社区合作伙伴,并于2023年9月启动了第一阶段重点小组.
- 第二阶段和第三阶段尚未开始;研究预计将于2025年3月完成.
结论:
- 该研究采用基于社区的混合方法方法来定义自闭症个体的有意义的社会包容.
- 它旨在阐明社会包容性在促进自闭症患者精神健康方面的关键作用.
- 预计研究结果将通过社会包容,为更好地理解和支持自闭症个体的心理健康做出贡献.
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