什么是真正的nontokenistic完全包容的患者和公众参与/参与研究?
Andrea Hilton1, Molly Megson2, Aidin Aryankhesal3
1Faculty of Health Sciences, School of Paramedical Peri-Operative and Advanced Practice, University of Hull, Hull, UK.
概括
患者和公众参与和参与 (PPIE) 在医疗保健研究中至关重要. 泰士研究有效地整合了PPIE,通过评估公众的意见来塑造痴呆症患者的睡眠管理.
科学领域:
- 医疗保健研究方法的方法.
- 患者和公众参与和参与 (PPIE)
- 痴呆症护理和睡眠管理
背景情况:
- 患者和公众参与和参与 (PPIE) 在医疗保健研究中至关重要,将其定义为"与"或"由"公众进行的研究.
- PPIE的重点是积极塑造研究方向,而不仅仅是参与.
- 国家卫生和护理研究院 (NIHR) 提供了PPIE的基本定义.
研究的目的:
- 展示TIMES项目如何最大限度地提高患者和公众参与和参与的包容性.
- 为了分享经验,并为研究人员提供有关实施有效PPIE的顶级技巧.
- 展示在医疗保健研究中听取,理解和重视公众声音的价值.
主要方法:
- 反思"决定支持工具的有效性,以优化社区为生活在痴呆症或轻度认知障碍 (TIMES) 患者的睡眠量身定制管理"的研究.
- 利用公众参与的英国六个关键标准:包容性机会,合作,支持和学习,沟通,影响力和治理.
- 与PPIE领导,学者和合作伙伴共同领导这项工作,包括"每天一起在痴呆症中",痴呆症创新",英国痴呆症声音网络"和利物浦中国福祉.
主要成果:
- 时代项目成功地接受了PPIE,通过确保公众的声音被听到,理解和重视.
- 通过"生活经验睡眠咨询论坛" (Lived Experience Advisory Forum on Sleep) 实现最大限度的包容性,该论坛包括痴呆症患者,家庭照顾者以及来自南亚和中国社区的代表.
- 根据英国公众参与的既定标准,制定了实际的见解和建议.
结论:
- 有效的PPIE是可以实现的,并且可以显著提高医疗保健研究,特别是在痴呆症睡眠管理等专业领域.
- 该TIMES项目作为一个模型,最大限度地提高包容性,并重视研究中的实践经验.
- 分享最佳实践和从TIMES研究中吸取的经验教训可以指导其他研究人员实施强大的PPIE策略.
相关概念视频
Patient-centered Care
2.0K
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.0K
Nursing Ethical Principles II
962
Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
962
Ethical Standards II
666
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
666
Ethics in Research
23.0K
Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
23.0K
Nursing Clinical Information System
773
Nursing Clinical Information System (NCIS)
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
A Nursing Clinical Information System (NCIS) is a specialized type of healthcare information system tailored to meet the unique needs of nursing practice. It incorporates the principles of nursing informatics to streamline information management and improve the quality of care delivery.
Critical attributes of NCIS include:
773
Community Based Intervention
42
Community-based interventions in mental health represent a paradigm shift from institution-centered care to treatments embedded within the fabric of local communities. By prioritizing inclusion and leveraging existing societal structures, this approach fosters a supportive environment conducive to addressing mental health challenges while promoting individual dignity and agency.
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
Foundations of Community Mental Health Programs
Central to the success of community-based interventions is the...
42


