研究患者参与如何影响研究:一种混合方法研究
Deborah A Marshall1,2, Nitya Suryaprakash3, Danielle C Lavallee4
1Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, 3280 Hospital Drive NW, Health Research Innovation Centre (HRIC) Building, Room 3C58, Calgary, AB, T2N 4Z6, Canada. damarsha@ucalgary.ca.
The patient
|March 15, 2024
概括
患者参与研究显著影响研究的所有阶段,从设计到知识翻译. 这种协作方法确保研究以患者为中心,严谨和有影响力.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 定性研究方法 定性研究方法
- 患者为中心的结果.
背景情况:
- 越来越多的证据支持患者参与研究.
- 关于PE对整个研究过程及其结果的影响的研究有限.
研究的目的:
- 调查患者参与在整个研究生命周期中的影响和结果.
- 增加关于患者研究伙伴 (PRP) 在研究设计和执行方面的影响的证据.
主要方法:
- 融合混合方法设计,整合调查和观察数据.
- 两个小组 (PRP领导和研究人员领导) 设计并进行了一项与炎症性肠病 (IBD) 相关的患者偏好研究.
- 经过验证的评估工具和观察结果在多个研究点评估了PE.
主要成果:
- 患者研究合作伙伴 (PRP) 积极参与研究的所有阶段:启动,设计,实施和知识翻译.
- PRP提高了研究设计,人口,数据收集和结果解释的清晰度.
- 合作伙伴关系产生了以患者为中心,严格,可行和可持续的研究项目.
结论:
- 有意义的患者和研究人员合作影响了所有定性研究阶段,包括设计,方法和输出.
- 综合患者参与导致更相关,更容易理解,更有影响力的研究成果.
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