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多发性硬化症多学科护理:全国调查和全球社区的教训
Liesbeth Van Hijfte1, Melissa Cambron2, Brigitte Capron3
1Ghent University Hospital, 4Brain Research Unit, Department of Neurology, Gent, Belgium.
Multiple sclerosis and related disorders
|March 15, 2024
概括
多学科团队和MS护士改善MS患者的医疗和社会经济支持 (PwMS). 加强对这些资源的获取,以及明确的指导方针和补偿,对于更好的多发性硬化症护理至关重要.
科学领域:
- 神经学 神经学
- 医疗保健管理的管理
- 公共卫生 公共卫生
背景情况:
- 在全球范围内,对MS患者 (PwMS) 提供标准化,补偿的多学科护理的机会有限.
- 本研究评估了比利时PwMS多学科护理的现状.
- 它确定了改善护理服务的好处,需求和未来方向.
研究的目的:
- 描述比利时PwMS的多学科护理.
- 确定与多学科护理相关的好处和需求.
- 探索优化多发性硬化护理的未来前景.
主要方法:
- 对PwMS,MS护士 (MSN) 和神经病学家进行了一项调查.
- 调查涵盖了MS的各个方面,护理观点和专业角色.
- 进行了描述性和单变量统计分析.
主要成果:
- 916名PwMS回答;65.3%的人可以使用多学科团队 (MDT),60.4%的人可以使用MSN.
- 获得MSN和MDT与更好的医疗和社会经济支持有关,包括更高的就业率.
- 没有MDT的PwMS更频繁地报告未满足的护理需求.
结论:
- 多学科团队和MS护士的可用性显著提高了PwMS的支持.
- 显然需要这些服务的标准化指导方针,调整和补偿.
- 在医院网络层面组织MDTs得到神经病学家的支持.
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