绘制公众对疾病严重程度含义的看法
Mille Sofie Stenmarck1, David Gt Whitehurst2, Rachel Baker3
1The Health Services Research Unit - HØKH, Akershus University Hospital HF, Lørenskog, Norway; Faculty of Medicine, University of Oslo, Norway.
Social science & medicine (1982)
|March 15, 2024
概括
公众对疾病严重程度的理解有所不同,观点集中在寿命,主观经验,客观措施和功能方面. 这种模糊性挑战了医疗保健决策中的明确优先设定标准.
科学领域:
- 公共卫生 公共卫生
- 卫生政策 卫生政策
- 卫生经济学 卫生经济学
背景情况:
- 疾病严重程度是确定医疗保健优先级的关键因素,但公众对其意义的看法尚未得到充分研究.
- 之前的一项Q方法研究确定了四个关于疾病严重性的公众观点:寿命,主观,客观以及功能和生活质量 (FQoL).
研究的目的:
- 调查挪威人口中关于疾病严重程度的四个公众观点的流行率和支持率.
- 通过澄清公众对疾病严重程度的理解,为医疗保健决策提供信息.
主要方法:
- 在2023年3月至4月期间,向代表性的挪威样本 (n=1094) 分发了一项在线调查.
- 参与者使用视觉模拟尺度对代表四个观点 (寿命,主观,目标,FQoL) 的图片进行了排名和评分.
- 用四个分类标准 (C1-C4) 分析了标对齐,以确定观点成员.
主要成果:
- 在C1分类中,寿命观点的一致性最高 (40.2%),其次是FQoL (32.4%),目标 (28.9%) 和主观 (16.3%).
- 使用更严格的标准 (C4),很大一部分受访者 (55.4%) 没有明确地与任何单一的标签保持一致,这表明了不同的解释.
- 寿命,目标和FQoL在C4下显示了一些维尼特会员资格,而主体的会员资格最低.
结论:
- "疾病严重程度"一词在公众中含糊不清,包含多种不同的含义.
- 医疗保健决策者在制定优先设定标准时应该承认这种多重意义.
- 为了准确和透明的标准制定,可能需要重新考虑使用多方面的术语"严重性".
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