为青少年提供在线患者门户的访问权限:与父母-青少年二极管的采访
Bryan A Sisk1, Alison L Antes2, Christine Bereitschaft3
1Division of Hematology/Oncology, Department of Pediatrics, Washington University School of Medicine, St. Louis, MO; Bioethics Research Center, General Medical Sciences, Department of Medicine, Washington University School of Medicine, St. Louis, MO.
The Journal of pediatrics
|March 16, 2024
概括
青少年和家长看到在线患者门户的好处和缺点,但许多青少年并不感兴趣. 患者门户可以更好地让青少年参与他们的医疗保健.
科学领域:
- 青少年健康 青少年健康
- 数字健康数字健康
- 患者的参与度 患者的参与度
背景情况:
- 在线患者门户网站为青少年健康管理提供了潜在的好处.
- 了解青少年和家长的观点对于优化门户使用至关重要.
研究的目的:
- 识别与青少年使用在线患者门户网站相关的感知好处,问题,促进者和障碍.
主要方法:
- 进行了质量,半结构化的采访,对51个父母-青少年二元 (有或没有慢性疾病) 进行了采访.
- 对采访成绩单进行了主题和二元分析.
主要成果:
- 参与者认为好处,如改善健康知识和自我管理,但也存在问题,如混乱和紧张的关系.
- 促进因素包括疾病的严重程度和技术的轻松性,而障碍则涉及缺乏意识和复杂的信息.
- 许多青少年对门户不知或不感兴趣,而二元组很少协作使用门户.
结论:
- 青少年和家长都认识到患者门户的优点和缺点.
- 许多青少年缺乏兴趣,这表明患者门户是未充分利用的资源,可以让他们参与他们的护理.
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