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患有无症状腹腔预兴奋症的儿童是否与健康儿童有相似的生活质量?
Emilia Szafran1, Michał Bartecki2, Anna Bukowska-Posadzy3
1Department of Pediatric Cardiology, Poznan University of Medical Sciences, Poznań, Poland. eszafran@ump.edu.pl.
Kardiologia polska
|March 17, 2024
概括
与健康同龄人相比,无症状的沃尔夫-帕金森-怀特综合征 (WPW) 儿童报告说,与健康同龄人相比,他们的健康满意度较低,心,悲伤和紧张等症状更多. 生活质量 (QoL) 总体上是相似的,但具体的身体和心理方面受到影响.
科学领域:
- 儿童心脏病学 儿童心脏病学
- 生活质量研究 研究 生命质量研究
- 电力生理学 电力生理学
背景情况:
- 没有研究过预兴奋模式的无症状儿童的生活质量 (QoL).
- 沃尔夫-帕金森-怀特综合征 (WPW) 是一种常见的预兴奋综合征.
研究的目的:
- 评估诊断为无症状沃尔夫-帕金森-怀特综合征 (WPW) 的儿童的生活质量 (QoL).
- 为了比较患有无症状WPW综合征的儿童与健康儿童的QoL.
主要方法:
- 一项涉及31名患有无症状WPW综合征的儿童和82名健康对照者的横截面研究.
- 使用WHOQOL-BREF和新的儿科心律失常相关得分 (PARS) 问卷进行QOL评估.
- 帕尔斯调查问卷捕捉了患者报告的与心律失常有关的感觉和观察.
主要成果:
- 在WPW和对照组之间,整体QOL满意度没有显著差异.
- 工作人员儿童报告说,他们对健康状况的总体满意度明显较低 (P = 0.01).
- 与对照组相比,WPW儿童出现了更多的心 (P <0.001),悲伤 (P = 0.046) 和紧张 (P = 0.04).
结论:
- 与健康儿童相比,患有无症状WPW综合征的儿童对自己的健康表现出更大的不满.
- 虽然整体QOL满意度是可比的,但WPW患者的特定身体和心理QOL领域受到负面影响.
- 帕斯问卷被认可为一个有价值的疾病特异性QOL工具,用于儿科心律失常管理中的临床决策.
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