与患有年轻发病痴呆症的人一起生活 - 配偶经验
Tania Håkansson1, Hilda Svensson1, Staffan Karlsson1,2
1School of Health and Welfare, Halmstad University, Halmstad, Sweden.
概括
患有幼年痴呆症的伴侣的配偶经历了各种情绪,并采用了应对策略. 他们往往希望从医疗保健服务获得更多的支持,以应对日常生活的挑战.
科学领域:
- 老年学是一门学科.
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 青春期痴呆症对工作年龄的个人及其配偶产生重大影响.
- 关于配偶照顾早期痴呆症伴侣的具体经历的研究有限.
- 照顾患有年轻发病痴呆症的伴侣面临着独特的挑战.
研究的目的:
- 探索配偶照顾患有幼年痴呆症的伴侣的日常经历.
- 了解这些护理人员的情绪格局和应对机制.
- 从配偶的角度确定支持需求.
主要方法:
- 描述性的定性设计.描述性的定性设计.
- 与九个配偶进行的半结构面试.
- 用于采访数据解释的内容分析.
主要成果:
- 配偶报告了各种各样的情绪,包括孤独,丧,担忧和和平.
- 确定的应对策略包括积极的重构,适应,避免和自我照顾.
- 护理人员表示需要更多的正式和非正式支持.
结论:
- 患有青春期痴呆症的配偶经历了复杂的情感经历.
- 他们在应对日常生活的挑战时表现出了创造力.
- 在所需的支持方面存在感知差距,特别是在医疗保健服务方面.
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