父母在家里与他们非常早产的孩子在一起的第一年需要的信息; 定性研究
Monique Flierman1,2, Daniel Bossen2, Rosa de Boer2
1Department of Rehabilitation Medicine, Amsterdam University Medical Center, Amsterdam, the Netherlands.
PEC innovation
|March 18, 2024
概括
非常早产婴儿的父母需要量身定制的信息和支持,以建立对婴儿护理的信心. 在家庭生活的第一年,医疗保健专业人员是满足这些不断变化的需求的关键.
科学领域:
- 新生儿护理 新生儿护理
- 父母的适应方式
- 儿童发展 儿童发展
背景情况:
- 在家里与一个非常早产 (VP) 婴儿的第一年为父母带来了独特的挑战.
- 父母的自我效能和信心对于成功的婴儿护理和发育至关重要.
- 现有的信息来源可能无法充分满足VP婴儿父母的具体需求.
研究的目的:
- 探索和理解父母在出院后的第一年与他们非常早产婴儿的信息需求.
- 确定家长信息要求中的关键主题和模式.
- 为这些家庭提供支持资源的开发提供信息.
主要方法:
- 半结构面试与参与响应式家长干预的VP婴儿的父母进行了半结构面试.
- 采访被录音,文字转录,并通过两个独立编码人员的感应主题分析进行分析.
- 专注于理解父母的观点和生活经验.
主要成果:
- 父母报告说,在婴儿的第一年里,他们的信息需求是多样化和不断变化的.
- 出现了三个主要主题:理解和应对,承担全部责任,以及获得自我护理技能.
- 像互联网这样的外部来源是不够的;父母优先考虑医疗保健专业人员提供量身定制的指导和保证.
结论:
- VP婴儿的父母需要持续,具体的信息,以培养他们对照顾能力和决策自主性的信心.
- 解决这些需求对于在早产后的关键第一年支持父母的自我效能至关重要.
- 医疗保健提供者和电子健康开发人员可以利用这些发现来创建更有效的支持系统.
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