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"我的UC故事":一项定性描述性研究,描述了性结肠炎患者的旅程
Amy K Jradi1, Jane Xia2, Tony Seet2
1Vancouver Coastal Health.
患者的性结肠炎诊断之旅往往是非线性的,与现有的文献相反. 药剂师可以帮助为患有症状的患者简化这一复杂的途径.
科学领域:
- 胃肠病学 胃肠病学
- 患者体验研究 研究研究
- 质量健康研究 质量健康研究
背景情况:
- 患者对诊断旅程的看法在医学文献中表现不足.
- 现有的研究主要集中在医疗保健专业人员对患者治疗过程的看法上.
- 性结肠炎患者的叙述特别稀缺,特别是关于诊断前的经历.
研究的目的:
- 定性地探索主观患者的旅程到性结肠炎的诊断.
- 为了确定性结肠炎患者的诊断旅程是否从患者的角度来看是线性的.
- 分析YouTube上的患者生成的内容,以深入了解诊断前的经历.
主要方法:
- 通过主题分析分析YouTube视频的定性研究.
- 在YouTube上搜索了"性结肠炎故事"和"性结肠炎诊断故事"等术语.
- 使用NVivo 12软件转录和编码了29个患者的独白 (2010-2020年).
主要成果:
- 在诊断前的旅程中,出现了三个主要主题:最初的症状,医疗保健系统的遭遇,以及胃肠科医生转诊.
- 发现患者到性结肠炎诊断的旅程实际上是非线性的.
- 药剂师在许多患者叙述中显著缺席,尽管他们可以获得.
结论:
- 诊断性结肠炎的患者经验复杂且非线性,与已建立的文献背道而.
- 药剂师错过了一个机会,可以在指导患者通过诊断过程中发挥更重要的作用.
- 为药剂师开发工具可以帮助患者应对症状,并简化性结肠炎诊断过程.
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