在与健康有关的数据处理的背景下,实施科学的人权
1Legal Faculty, BioQuant Centre, Heidelberg University, Im Neuenheimer Feld 267, 69120 Heidelberg, Germany.
Journal of law and the biosciences
|March 18, 2024
概括
本文探讨了人类对科学的权利,特别是"国际社会权利和人权公约"第15条,如何指导健康数据的处理. 它旨在使欧盟数据治理与科学创新保持一致,并保护个人权利.
科学领域:
- 生物伦理学生物伦理学
- 人权法 人权法 人权法
- 卫生法 法律 卫生法
背景情况:
- 科学创新对人类健康有潜在的危害和益处.
- 与健康相关的数据处理对于生物医学知识至关重要.
- 根据"国际社会权利和人权公约"第15条,人类对科学的权利是基本的.
研究的目的:
- 探索与预测科学创新的危害/益处相关的职责在健康环境中的应用.
- 解决欧盟内科学和健康数据处理的人权的交叉问题.
- 塑造欧盟数据治理框架,使其与人类对科学的权利保持一致.
主要方法:
- 根据ICESCR第15条第1款 (b) 项对科学权的解释的概述.
- 分析ICESCR对欧盟成员国和欧盟的相关性.
- 审查科学权如何影响欧盟通用数据保护条例 (GDPR) 的解释和应用.
主要成果:
- 人类对科学的权利为解释欧盟数据保护法提供了一个框架.
- 提供了关于将数据保护原则应用于与健康相关的数据处理的指导.
- 为欧盟立法者确定治理措施,以使健康数据处理与科学权保持一致.
结论:
- 将欧盟数据治理与人类对科学的权利保持一致,对于负责任的创新至关重要.
- 卫生数据处理的标准化可以确保规则的连贯应用.
- 这项研究旨在弥补欧盟关于健康数据的数据保护法律的解释差距.
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