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[家庭人工营养的儿科患者的登记. 西班牙的经验]
Marta Germán Díaz1, Esther Ramos Boluda2, José Manuel Moreno Villares3
1Sección de Gastroenterología, Hepatología y Nutrición Infantil. Departamento de Pediatría. Hospital Universitario 12 de Octubre.
Nutricion hospitalaria
|March 19, 2024
概括
接受家庭人工营养的儿童数量正在增加,但很少有活跃的患者登记册来跟踪这一趋势. 这限制了对基本儿科营养服务的资源分配.
科学领域:
- 儿童营养学 儿童营养学
- 医疗保健信息学 医疗保健信息学
- 公共卫生 公共卫生
背景情况:
- 由于慢性疾病的改善结果,婴儿和儿童家庭人工营养的流行率越来越高.
- 需要准确的患者数据来评估家庭人工营养服务的资源需求.
研究的目的:
- 审查现有的家庭人工营养患者登记册的特点.
- 确定活跃的儿科注册表,用于跟踪在家接受人工营养的患者.
主要方法:
- 系统审查可用的患者登记册.
- 专注于专门针对需要家庭人工营养的儿科患者的注册表.
主要成果:
- 在2023年,目前只有两个儿科注册表活跃:加拿大和西班牙的注册表 (NADYA和REPAFI).
- 英国学会的BANS注册在2018年停止了数据收集.
- 全球范围内只有有限数量的活跃注册表可用.
结论:
- 尽管对家庭人工营养的流行率和发病率数据的重要性得到了认可,但活跃登记册的稀缺性仍然是一个挑战.
- 数据不足阻碍了对儿科家庭人工营养计划的有效资源规划和分配.
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