作为科学和经验专家一起工作:当前的伦理PAR原则如何在研究小组中与患有发育性语言障碍的年轻人一起工作?
Karijn Aussems1,2, Jet Isarin1, Alistair Niemeijer3
1Academy, Royal Dutch Kentalis, Utrecht, the Netherlands.
概括
参与行动研究 (PAR) 的伦理原则需要适应具有发育性语言障碍 (DLD) 的共同研究人员. 通过经验获得的实用见解比严格的原则更有效,用于伦理研究实践.
科学领域:
- 社会科学 社会科学 社会科学
- 心理学 心理学 心理学
- 语言学的语言学.
背景情况:
- 参与式行动研究 (PAR) 提出了独特的伦理挑战.
- 存在七个伦理原则,但它们在各个领域的实际应用是不充分记录的.
- 同研究人员与发展性语言障碍 (DLD) 患者的合作需要道德考虑.
研究的目的:
- 评估在PAR与DLD的共同研究人员的合作中,建立的伦理原则的应用.
- 探讨这些原则如何促进对研究实践的反思.
- 为包容和有效的研究参与而适应伦理原则.
主要方法:
- 利用七个伦理原则来评估PAR的合作.
- 简化了共同研究人员理解的原则语言.
- 通过引用特定的研究事件,促进了共同研究人员的反思.
- 将多重角色的概念融入到个人诚信原则中.
主要成果:
- 简化语言对于共同研究人员将原则与实践联系起来至关重要.
- 回忆特定事件有助于共同研究人员将原则与他们的经验联系起来.
- 个人诚信原则被扩展到包括多重角色的复杂性.
- 建议从"伦理原则"转向"实践见解".
结论:
- 在PAR的伦理原则要求适应是可访问和相关的共同研究人员,特别是那些与DLD.
- 通过实践学习产生了实用的见解,这些见解比固定的原则更具动态性,更适应研究背景.
- 护理伦理为理解和完善协作研究中的伦理实践提供了一个有价值的镜头.
- "实用见解"的概念更好地反映了PAR中伦理考虑的不断变化的,取决于背景的性质.
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