自闭症患者对功能标签和相关原因的看法,以及社区联系
Nathan Keates1, Farradeh Martin2, Krysia Emily Waldock3
1University of Sunderland in London, 197 Marsh Wall, Docklands, London, E14 9SG, UK. Nathan.keates@sunderland.ac.uk.
自闭症患者绝大多数喜欢像"自闭症"这样的身份第一语言,并发现功能性标签令人讨厌. 社区连接影响了关于支持需求的语言选择.
科学领域:
- 神经多样性研究研究的神经多样性研究.
- 语言的社会心理学.
背景情况:
- 功能标签被用来区分自闭症社区内的支持需求.
- 了解语言偏好对于尊重沟通和认同肯定至关重要.
研究的目的:
- 识别自闭症者对语言的看法,用于描述自闭症和功能.
- 调查社区连接如何影响语言和功能标签的可接受性.
主要方法:
- 对516名自闭症受访者进行了一项调查.
- 问题涉及人口特征,自闭症患者的首选术语,以及各种标签的可接受性 (例如,自闭症患者,自闭症).
- 评估了受访者的自闭症社区连接和对功能标签的看法.
主要成果:
- 97%的受访者认为"自闭症"这个词是可以接受的.
- 对他人使用功能标签的受访者并不一定对自己使用这些标签.
- 社区成员身份显著影响了语言偏好,用于描述自闭症支持需求.
结论:
- 对语言偏好的最佳方法是选择最不冒犯或不愉快的术语,而不是寻求共识.
- 优先考虑身份的语言优先于其他形式的语言.
- 应该避免使用功能性的标签.
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