生物调试的股权,费用和专业知识:将患者添加到方程中
1IBDrelief Ltd, Brighton, UK.
Expert opinion on biological therapy
|March 21, 2024
概括
患有免疫媒介性炎症性疾病 (IMIDs) 的患者在英国面临着对生物药物的不平等接入. 更大的透明度和患者参与处方决策对于公平和改善治疗体验至关重要.
科学领域:
- 免疫学 免疫学 免疫学
- 药理学 药理学是指药理学的学科.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 生物药物为免疫媒介炎症疾病 (IMIDs) 提供了有效的管理.
- 生物制剂的高成本使得英国需要有效,公平和包容的处方做法.
- 以患者为中心的共享决策是公认的,但在IMIDs的生物选择中尚未完全实施.
研究的目的:
- 介绍患者对英国IMID生物制剂的委托,处方和决策流程的观点.
- 从不同优先级的不同利益相关者的角度来研究生物处理中的"价值"概念.
主要方法:
- 患者视角的定性分析.
- 在英格兰的IMID中对生物制剂的调试和处方实践的审查.
- 利益相关者价值评估框架的考虑.
主要成果:
- 在英国的IMID中,生物制剂的调试,获取和处方存在显著的差异.
- 目前的做法导致不公平的治疗环境和患者不满,被描述为"经验彩票".
- 利益相关者的不同优先事项使生物疗法"价值"的确定变得复杂.
结论:
- 对生物处方决定采取更透明的方法对于IMID管理至关重要.
- 与患者进行密切商对于提高生物治疗中的公平性和患者体验至关重要.
- 解决生物接入方面的差异对于改善免疫媒介炎症疾病的结果至关重要.
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