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Updated: Jun 30, 2025

Establishment of a Clinic-based Biorepository

Establishment of a Clinic-based Biorepository

Published on: May 29, 2017

开发众包的临床注册研究研究

Carolynn Thomas Jones¹, Jeremy Walker, Rachel L McMullen

¹Carolynn Thomas Jones is clinical professor and director of the Master of Clinical Research Program at The Ohio State University College of Nursing in Columbus. Jeremy Walker is an assistant professor at the University of Alabama Birmingham School of Medicine, where Rachel L. McMullen is a clinical trials specialist and Peter G. Pappas is a professor of medicine. Contact author: Carolynn Thomas Jones, jones.5342@osu.edu . Article development was supported by National Center for Advancing Translational Sciences Grants No. UL1TR002733 and No. UM1TR004548. The authors wish to acknowledge Jeremy Gold, MD, MS, medical epidemiologist at the Centers for Disease Control and Prevention (CDC), for his guidance regarding study methodology. The authors were funded in part by CDC Cooperative Agreement No. CDC-RFA-CK20-2003. The findings of this report are those of the authors and do not necessarily represent the official position of the CDC.

The American journal of nursing

|March 21, 2024

概括

众包注册表迅速收集重要的公共卫生数据,帮助研究COVID-19结果和实验性治疗方法. 这种方法提高了临床研究护士的技能,以应对未来的健康问题.

科学领域:

公共卫生公共卫生
临床研究临床研究
数据科学数据科学数据科学

背景情况:

众包注册表对于在公共卫生紧急情况下快速收集数据非常有价值.
在COVID-19大流行期间建立的注册表解决了有关共感染,治疗和结果的关键问题.
登记册的使用正在扩大,以支持临床试验和长期患者结果跟踪.

研究的目的:

审查注册表方法,重点关注众包和现实世界的数据收集.
突出注册方法对护士研究人员和临床研究护士的适用性.
为了说明这些方法,使用COVID-19和加密球菌疾病注册表的例子.

主要方法:

审查关于注册表方法的现有文献.
分析数据收集策略,包括众包和真实世界的数据.
针对COVID-19和加密球菌病的特定众包注册表的案例研究.

主要成果:

在健康危机期间,注册表数据可以快速回答关键问题.
方法与既定的指导方针保持一致 (例如,医疗保健研究和质量机构).
众包注册表为各种研究需求提供了灵活的方法.

结论:

注册表方法是护士研究人员的可转移技能.
有效的规划,执行和分析对于成功的注册表至关重要.
众包注册表为推进公共卫生研究提供了一个强大的工具.

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