患者对专业记忆诊所诊断工作的期望和经验:采访研究
Malin Aspö1,2, Maria Sundell1,2, Myroslava Protsiv1
1Division of Clinical Geriatrics, Department of Neurobiology, Care Sciences and Society, Center for Alzheimer Research, Karolinska Institutet, Stockholm, Sweden.
概括
了解患者的期望是改善认知衰退患者访问记忆诊所的关键. 定制诊断过程可以提高患者的体验,并鼓励更健康的生活方式.
科学领域:
- 神经学 神经学
- 老年学是指老年学的学科.
- 心理学 心理学 心理学
背景情况:
- 越来越多的患有主观认知衰退 (SCD) 和轻度认知障碍 (MCI) 的患者被诊断得更早.
- 记忆诊所面临的挑战是根据患者个体需求量身定制诊断工作.
- 优化护理质量需要了解患者对诊断过程的看法.
研究的目的:
- 探索患者在一个专门的记忆诊所对诊断工作的看法.
- 确定在痴呆症/阿尔茨海默病诊断过程中改善患者护理和经验的领域.
- 在整个诊断过程中了解患者的需求和期望.
主要方法:
- 在卡罗林斯卡大学医院进行了一项定性采访研究.
- 15名患者 (SCD,MCI,AD痴呆症) 参加了三个半结构面试.
- 专题内容分析用于分析转录的采访数据.
主要成果:
- 患者的期望和动机显著影响了他们的临床体验.
- 诊断工作对个人产生了显著的心理社会影响.
- 该过程为患者提供了采用更健康的生活方式的机会.
结论:
- 询问患者的期望和需求对于个性化护理和期望管理至关重要.
- 结构性指导可以支持SCD和MCI患者应对不确定性并促进大脑健康.
- 定制诊断工作提高了患者的体验,并可以激发生活方式的改变.
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