2型糖尿病的新兴成年人:了解疾病经验和过渡到成人护理
Emma K Edmondson1, Stephanie M Garcia2, Emily F Gregory3
1Department of Pediatrics, Children's Hospital of Philadelphia and University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania; Department of Medicine, University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania; Policy Lab and Clinical Futures, Children's Hospital of Philadelphia, Roberts Center for Pediatric Research, Philadelphia, Pennsylvania; Leonard Davis Institute of Health Economics, University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania.
患有青年发病2型糖尿病 (T2D) 的新兴成年人面临着向成人护理过渡的挑战,需要对心理健康和组织技能的支持. 他们的经验突出了影响成功管理和护理过渡的关键因素.
科学领域:
- 内分泌学 在内分泌学.
- 青少年医学 青少年医学
- 心理学 心理学 心理学
背景情况:
- 青少年发病的2型糖尿病 (T2D) 是一个日益关注的问题,通常在从儿科到成人医疗保健过渡之前被诊断出来.
- 对于新兴成年人 (EA) 与T2D的经历及其过渡准备程度的了解有限.
研究的目的:
- 描述患有T2D的EA患者的疾病经历.
- 探索T2DEAEA患者对医疗保健转型的看法.
- 通过使用过渡准备评估问卷 (TRAQ) 检查与过渡准备相关的主题.
主要方法:
- 混合方法研究,涉及与患有T2D的EA进行半结构面试.
- 在面试指南开发中应用健康信念模型.
- 管理TRAQ和收集电子医疗记录疾病指标.
- 定性数据的定向内容分析,与通过TRAQ分数分层的定量数据进行三角化.
主要成果:
- 经验评估指出,适应慢性疾病和管理心理健康对于过渡至关重要.
- 感知到的并发症风险受家庭病史的影响;自我有效性取决于组织技能.
- 过渡被认为是一个重要的障碍,有情绪和后勤障碍.
- 在整个过渡过程中,强调了护理人员和提供者的支持.
- 根据TRAQ分数,没有观察到主题的显著变化.
结论:
- 与T2D相结合的EA在过渡期需要加强支持.
- 支持的关键领域包括心理健康,组织技能发展和确定关键支持网络.
- 解决这些因素对于促进成功的长期糖尿病护理管理至关重要.
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