亚洲血友病护理:从亚洲一些国家的临床实践中学习
Pantep Angchaisuksiri1, Marilou Amurao-Abiera2, Sheng-Chien Chou3
1Department of Medicine, Ramathibodi Hospital, Mahidol University, Bangkok, Thailand.
概括
亚洲的血友病护理取得了进展,但在诊断,治疗准入和患者遵守方面面临挑战. 战略方法和多方利益相关者的参与对于改善整个地区的护理标准至关重要.
科学领域:
- 血液学 血液学 血液学
- 公共卫生 公共卫生
- 全球健康 全球健康
背景情况:
- 亚洲的医疗保健系统表现出显著的多样性,受影响的是影响血友病管理的社会经济和文化因素.
- 医疗保健基础设施和医疗保健准入的差异导致亚洲地区血友病护理的差异.
研究的目的:
- 评估亚洲血友病护理的现状.
- 识别临床实践和护理提供中的挑战和变化.
- 了解亚洲不同医疗保健机构中血友病的流行和管理情况.
主要方法:
- 召开了亚洲血友病护理专家的咨询委员会会议.
- 收集关于临床实践和护理提供中异质性的见解.
- 分析了有关流行,诊断和治疗方式的区域数据.
主要成果:
- 亚洲血友病的患病率在每10万人中从3到8.58不等,而血友病A更为常见 (5:1比).
- 由于诊断局限性,缺乏登记册和郊区资源限制,诊断不足是普遍存在的.
- 高标准护理面临的挑战包括患者不愿接受静脉注射治疗,合规问题,预算限制和对因子缩剂的限制;抑制剂的患病率为5-20%.
结论:
- 亚洲的血友病护理取得了显著的进步.
- 持续面临的挑战需要战略规划和多方利益相关者的合作,以进一步改进.
- 提高对诊断,治疗和患者支持的准入对于亚洲公平的血友病管理至关重要.
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