用于头痛疾病的PROM的可读性分析和概念映射
Merel H J Hazewinkel1, Lisa Gfrerer1, Sait Ashina2,3
1Department of Plastic and Reconstructive Surgery, Weill Cornell Medicine, New York, New York, USA.
Headache
|March 25, 2024
概括
患者报告的头痛疾病的结果指标 (PROM) 往往是患者难以理解的. 目前的PROM也未能充分捕捉头痛疾病对生活质量的影响.
科学领域:
- 神经学 神经学
- 患者报告的结果
- 医疗保健服务研究 医疗服务研究
背景情况:
- 以患者为中心的医疗保健模式需要患者报告的结果措施 (PROMs) 来评估头痛疾病的治疗结果.
- 有效的PROM必须易于理解 (6级或以下的阅读级别) 并全面捕捉头痛疾病的患者相关方面.
- 本研究评估了用于初级头痛疾病文献中的PROMs的可读性和全面性.
研究的目的:
- 评估用于初级头痛疾病文献中的PROMs的可读性.
- 通过将它们的内容映射到与健康有关的生活质量框架中,评估这些PROM的全面性.
主要方法:
- 最近发表的系统性审查的范围审查确定了用于初级头痛疾病的PROM.
- 用既定指标对单个项目和完整的PROM进行了可读性分析.
- 两位独立审查员将PROM的内容与与健康有关的生活质量框架进行了映射.
主要成果:
- 分析了22个PROM (15个特定于头痛,7个通用). 平均阅读成绩水平从7.1到12.7不等,超过了推的6年级水平.
- 没有PROM达到推的可读性标准;19个超过8级.
- PROMs主要评估身体功能 (32%) 和症状 (30%),对心理 (10%),社会 (7%),或性福利 (1%) 的评估有限.
结论:
- 头痛障碍文献中的PROM通常存在可读性挑战,可能导致数据不准确.
- 现有的PROM在测量头痛疾病对健康相关生活质量影响方面缺乏全面性.
- 需要一个有效的,针对头痛的PROM,既易于理解又全面.
相关概念视频
01:26Methods of Documentation II: POMR
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The Problem-Oriented Medical Record (POMR) revolutionized medical record-keeping by introducing a systematic approach focusing on the patient's problems rather than merely listing symptoms. Dr. Lawrence Weed's introduction of this method in the 1960s marked a significant advancement in medical documentation. The POMR framework consists of four key components: the database, problem list, plan of care, and progress notes.
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01:24Concepts and Prototypes
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The human nervous system handles vast amounts of information by translating sensory stimuli into neural impulses, which the brain processes, creating thoughts expressed through language or stored as memories. The brain also synthesizes information from emotions and memories, which significantly influence thoughts and behaviors. This intricate process creates a comprehensive mental picture.
The brain organizes this information using concepts, which are mental categories grouping linguistic data,...
The brain organizes this information using concepts, which are mental categories grouping linguistic data,...
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01:13Amnesia
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Amnesia is a condition marked by long-term memory loss, which impairs the ability to recall past events or create new memories.
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Retrograde amnesia is marked by the loss of memories formed before the onset of the condition. Patients may recall distant past events but often forget those occurring shortly before the incident.
Anterograde...
The severity and duration of memory loss vary depending on the type and underlying cause. Amnesia is classified into two main types: retrograde and anterograde.
Retrograde amnesia is marked by the loss of memories formed before the onset of the condition. Patients may recall distant past events but often forget those occurring shortly before the incident.
Anterograde...
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01:23Assessment of the Cardiovascular System I: Subjective Data
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A thorough health history and physical assessment are essential for identifying cardiovascular disease (CVD) symptoms and distinguishing them from other health issues.
Initial Enquiry
Ask the patient about their primary concern and thoroughly explore all reported symptoms.
Medical History
Investigate past illnesses affecting the cardiovascular system, such as angina, anemia, rheumatic fever, congenital heart disease, stroke, thrombophlebitis, dysrhythmias, varicosities
Inquire about symptoms...
Initial Enquiry
Ask the patient about their primary concern and thoroughly explore all reported symptoms.
Medical History
Investigate past illnesses affecting the cardiovascular system, such as angina, anemia, rheumatic fever, congenital heart disease, stroke, thrombophlebitis, dysrhythmias, varicosities
Inquire about symptoms...
323