探索基于网络的信息和资源,以支持癌症青少年和年轻人恢复学习和工作:环境扫描研究
Clarissa E Schilstra1, Sarah J Ellis1, Jennifer Cohen2,3
1Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Faculty of Medicine and Health, Randwick Clinical Campus, University of New South Wales Sydney, Randwick, Australia.
JMIR cancer
|March 25, 2024
概括
针对患有癌症的青少年和年轻人 (AYA) 的网络资源往往缺乏证据和文化包容性. 需要改进,可访问的在线支持,以帮助患有癌症的AYA应对教育和工作挑战.
科学领域:
- 在瘤学瘤学.
- 青少年和年轻人的健康 (AYA)
- 数字健康干预措施 数字健康干预措施
背景情况:
- 癌症及其治疗对青少年和年轻人 (AYA) 参与教育和工作的能力产生重大影响.
- 脱离教育或工作可能会导致AYA的长期财务,心理和生活质量挑战.
- 患有癌症的澳大利亚AYA需要可访问的,基于网络的教育和工作支持,但现有的资源尚未明确定义.
研究的目的:
- 识别现有的基于网络的资源,以支持澳大利亚癌症患者恢复教育或工作.
- 根据适合年龄,癌症特异性,文化包容性,证据库,与AYA共同设计以及易于访问的基础上评估这些资源.
主要方法:
- 使用谷歌搜索进行的环境扫描发现了24个基于网络的资源,用于癌症患者的AYA.
- 资源被评估为可理解性,可操作性,可读性和易于定位.
- 标准包括以证据为基础,与AYA共同设计,在文化上包括原住民和托雷斯海峡岛民.
主要成果:
- 确定了24个基于网络的资源,主要来自非政府组织.
- 大多数资源的可理解性和可操作性都很差.
- 资源经常难以定位,很少以证据为基础或与AYA共同设计,缺乏文化包容性.
结论:
- 现有的网络资源用于癌症患者的AYA往往在质量和可访问性方面不足.
- 需要更多基于证据,可操作和文化包容性的在线资源.
- 资源应以多种格式提供,并根据年龄量身定制,以更好地支持AYA的教育和职业目标.
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