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家庭照顾者的个人资料和负担:多发性硬化症的照顾经验. 一个观察性研究研究
Michela Ponzio1, Andrea Tacchino2, Anna Verri2
1Scientific Research Area, Italian Multiple Sclerosis Foundation, Via Operai 40, 16149, Genoa, Italy. michela.ponzio@aism.it.
BMC psychology
|March 26, 2024
概括
多发性硬化症 (MS) 的护理人员负担很大,68%的人报告高水平. 身体和精神健康是影响这种负担的关键因素.
科学领域:
- 神经学 神经学
- 护理人员支持护理人员支持
- 公共卫生 公共卫生
背景情况:
- 照顾患有多发性硬化症 (MS) 等慢性疾病的家庭成员往往会给照顾者带来很大的负担.
- 了解MS护理人员的个人资料和负担对于制定有针对性的支持策略至关重要.
研究的目的:
- 描述MS患者家庭护理人员的个人资料.
- 评估这些护理人员所经历的负担程度.
- 确定影响MS护理人员负担的因素.
主要方法:
- 一项涉及200名MS患者家庭护理人员的横截面研究.
- 数据收集包括护理人员的社会人口统计,健康,MS的知识,应对策略,情绪,社会支持和护理接受者信息.
- 使用Zarit负担采访 (ZBI) 测量护理人员负担,并进行分层分析以确定预测因素.
主要成果:
- 68%的MS护理人员报告说,他们觉得护理负担很重 (ZBI分数>20).
- 身体和心理健康变量是护理人员负担的重要预测因素,解释了40.9%的差异.
- 护理人员负担受到个人健康和护理相关因素的组合的影响.
结论:
- 对MS患者的家庭照顾者经常填补国家卫生和福利系统的空白.
- 保持良好的身心健康对于减少看护人负担至关重要.
- 建议MS护理人员采取旨在缓解心理痛苦,减少担忧和减轻感知负担的干预措施.
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