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转向神经瘤学中以家庭为中心的护理的转变范式:一个纵向的准实验混合方法可行性研究
Karin Piil1,2, Giulia Locatelli3, Stine Laegaard Skovhus1
1Copenhagen University Hospital, Rigshospitalet, Denmark.
家庭和网络对话 (FNCs) 等以家庭为中心的干预措施对高度质瘤患者及其家人来说是可行的. 护士交付的FNC整体地满足需求,加强家庭纽带,并需要量身定制的方法.
科学领域:
- 在瘤学瘤学.
- 家庭医学 家庭医学 家庭医学
- 护理 护理 护理
背景情况:
- 对患有严重疾病的患者来说,以家庭为中心的护理至关重要.
- 高度质瘤为患者及其家人带来了独特的挑战.
- 需要有效的干预措施来支持癌症治疗期间的家庭福祉.
研究的目的:
- 评估家庭和网络对话 (FNCs) 对高度质瘤患者及其家属的可行性.
- 探索患者,家庭和护士与FNC的经验.
- 评估FNC对家庭沟通和支持的影响.
主要方法:
- 准实验性可行性研究,采用纵向混合方法设计.
- 包括21名高度质瘤患者和47名家庭成员.
- 在一年内举行三次FNC会议,收集定量 (问卷) 和定性 (采访,焦点小组) 数据.
主要成果:
- 护士交付的FNC被发现是可行的,并全面解决了家庭需求.
- 干预加强了家庭对话和团结,尽管定量和定性数据显示了一些差异.
- 护士报告说,他们感到有权力,但强调需要高级能力.
结论:
- 护士交付的家庭和网络对话是针对高度质瘤患者的以家庭为中心的护理的一个可行的方法.
- 干预有效地支持家庭,但需要根据家庭的个体需求进行调整.
- 可能需要进一步的研究来完善提供FNC的护士的高级能力.
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