在日本,吸收性原发性脱脂症的过渡医学
Masatsune Ogura1, Sachiko Okazaki2, Hiroaki Okazaki3
1Department of Clinical Laboratory Technology, Faculty of Medical Science, Juntendo University.
Journal of atherosclerosis and thrombosis
|March 27, 2024
概括
过渡医学确保了儿童发病的持续护理到成年. 日本的差距 在日本的差距
科学领域:
- 过渡医学是过渡时期的医学.
- 罕见和不可治疗的疾病.
- 遗传学和卫生系统
背景情况:
- 儿童发病需要无的护理过渡到成年.
- 主要的脂质失调症,通常是遗传性,在日本被指定为难以治愈的疾病,需要终身管理,并产生高成本.
- 不充分的过渡期护理会对患者的预后产生负面影响.
研究的目的:
- 审查日本对初级脂质失调症的过渡医学方面的挑战.
- 突出这些患者的医疗和社会护理连续性的问题.
- 为卫生,劳动和福利部委员会努力提供信息.
主要方法:
- 审查目前的日本医疗保健系统的过渡期护理.
- 对诊断标准和医疗补助计划的分析.
- 检查专家的可用性和跨学科的合作.
主要成果:
- 由于专家短缺和儿科和成人护理提供者之间的沟通不良,原发性脂质失调的诊断率较低.
- 儿科和成人计划之间不匹配的诊断标准阻碍了过渡后医疗费用补贴.
- 失去从童年到成年期护理过渡的患者的财政援助的风险.
结论:
- 显著的系统性问题阻碍了日本初级失脂症的有效过渡医学.
- 解决这些差距对于改善患者的治疗结果和确保持续支持至关重要.
- 需要提出建议,以便在儿科和成人医疗保健系统中协调护理和补贴.
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