"恢复力?"这是一个问题. 来自患有状细胞病的成年人的观点
Corinne April I Conn1, Melissa S Creary2, Stacy Desine3
1University of California Los Angeles Harbor, 100 W Carson St. Torrance CA 90502, USA.
患有状细胞疾病 (SCD) 的成年人将弹性定义为"不放弃"和前进的动态过程. 这与标准测量不同,强调了需要以患者为中心的方法.
科学领域:
- 医学 社会科学 医学社会科学
- 心理学 心理学 心理学
- 血液学 血液学 血液学
背景情况:
- 状细胞疾病 (SCD) 显著影响成人生活质量.
- 恢复力是应对慢性疾病的关键因素.
- 现有的弹性测量可能无法捕捉SCD个体的经历.
研究的目的:
- 探索和定义在美国被诊断患有状细胞疾病 (SCD) 的成年人中的性.
- 为了比较患者定义的弹性与标准化规模的措施.
主要方法:
- 使用半结构面试对30名患有SCD的成年人进行定性研究.
- 参与者从INSIGHTS研究 (2014-2018) 中根据简要弹性量表 (BRS) 四分位数进行了选择.
- 所有参与者都是黑人,平均年龄为42.5.5岁.
主要成果:
- 三个核心概念定义了弹性:"不放弃"",如何应对挑战"",向前迈进".
- 患者定义强调弹性是一种持续的过程,特别是"不放弃".
结论:
- 标准化的弹性措施可能与患有SCD的成年人的经验不一致.
- 在SCD中,弹性是一个动态的过程,重点是坚持不.
- 医疗保健提供者应该参与有关患者应对策略的对话,以支持弹性.
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