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患有贝克威思-维德曼综合征的儿科患者的抑郁和焦虑:一个试点研究
Grazia D'Onofrio1, Annalisa Mastromatteo2, Andrea Di Francesco3
1Clinical Psychology Service, Health Department, Fondazione IRCCS Casa Sollievo della Sofferenza, San Giovanni Rotondo, 71013 Foggia, Italy.
Children (Basel, Switzerland)
|March 28, 2024
概括
患有贝克维斯-维德曼综合征 (BWS) 的儿童经常经历内化行为和焦虑,影响社会技能. 父母的负担与这些症状有关,突出了在BWS治疗中需要有针对性的心理支持的需要.
科学领域:
- 儿科心理学 儿科心理学
- 临床遗传学 临床遗传学
- 发育儿科 发育儿科
背景情况:
- 贝克威特-维德曼综合征 (BWS) 是一种复杂的过度生长障碍,具有潜在的神经发育影响.
- 在患有罕见遗传疾病的儿童中,越来越多地发现精神健康并发症,包括焦虑和抑郁症.
- 了解对受影响儿童及其家属的心理社会影响对于综合护理至关重要.
研究的目的:
- 调查诊断为BWS的儿童中抑郁和焦虑症状的患病率.
- 评估这些症状对儿童社会关系和家庭动态的影响.
- 评估家长负担的程度及其与孩子心理状态的相关性.
主要方法:
- 使用儿科症状检查清单-35 (PSC-35) 和儿童焦虑相关情绪障碍 (SCARED) 屏幕进行儿童症状评估.
- 使用维尼兰适应性行为量表第二版 (VABS-II) 来评估适应性行为和社会化.
- 向家长进行接受拒绝/控制问卷 (PARQ/Control) 和扎里特负担清单 (ZBI) 进行家庭评估.
主要成果:
- 患有BWS的儿童表现出显著的内化行为 (PSC-35平均值:7.66 ± 3.67) 和焦虑症状 (SCARED平均值:46.33 ± 17.50).
- 观察到社会化困难 (VABS-II平均值:90.83±10.09).他们也出现了社会化困难.
- 父母报告中度至重度负担 (ZBI平均值:59.33±16.78),这与孩子的内化行为 (OR=2.000,p=0.022) 和焦虑 (OR=3.000,p=0.005) 有显著的相关性.
结论:
- 患有BWS的儿童面临着内化行为和焦虑的显著负担,影响社会适应.
- 父母的心理负担与孩子的内化和焦虑症状直接相关.
- 在BWS治疗中,心理咨询应侧重于确定应对资源,并解决患者和家庭适应障碍.
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