自闭症,耻辱和南亚移民家庭在加拿大
Fariha Shafi1, Amirtha Karunakaran1, Farah Ahmad1
1School of Health Policy and Management, York University, Toronto, ON M3J 1P3, Canada.
概括
加拿大的南亚移民父母因耻辱而面临自闭症诊断和服务的重大障碍. 这种照顾者的压力影响到家庭,突出了需要公平的支持系统.
科学领域:
- 发展心理学 发展心理学
- 公共卫生 公共卫生
- 社会学 社会学 社会学
背景情况:
- 早期的自闭症识别和支持可以改善患有该频谱的儿童的结果.
- 种族化家庭经常面临延迟诊断和服务获取障碍.
- 有限的研究存在于移民父母在加拿大自闭症护理的经验.
研究的目的:
- 检查南亚移民父母在加拿大自闭症护理计划和支持方面的经验.
- 调查南亚移民父母对围绕自闭症的社会耻辱感的看法.
- 为了确定障碍物和促进者访问自闭症服务的这一群体.
主要方法:
- 使用感应性主题分析进行定性研究.
- 数据来自加拿大安大略省9次深入采访南亚父母的数据.
- 探讨家长对诊断,服务获取和社会耻辱的经验.
主要成果:
- 确认了自闭症诊断和南亚移民家庭服务获取的重大障碍.
- 确定了与自闭症相关的明显的社会耻辱,阻碍了及时诊断和护理.
- 在参与的父母中发现了相当大的照顾者压力和心理压力.
- 突出了由于耻辱和系统性问题而获得促进健康行为的挑战.
结论:
- 调查结果强调加拿大迫切需要文化敏感和公平的自闭症支持服务.
- 解决社会耻辱对于改善移民背景自闭症儿童的诊断,服务获取和福祉至关重要.
- 生成的证据可以为政策和实践提供信息,以更好地支持自闭症儿童及其移民家庭.
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