在分散的公共卫生系统中共享数据:从COVID-19综合征监测中吸取教训
Ryan C Rigby1, Alva O Ferdinand2, Hye-Chung Kum3
1Program in Health, Law, and Policy, Department of Health Policy and Management, Texas A&M University School of Public Health, College Station, TX, United States.
JMIR public health and surveillance
|March 28, 2024
概括
由于联邦制,跨政府层面共享综合征监测数据面临着挑战. 需要新的政策来建立一个合作框架,以改善国家公共卫生信息系统.
科学领域:
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
- 流行病学 流行病学
背景情况:
- COVID-19大流行突出了公共卫生信息系统中持续存在的数据共享问题.
- 在州,地方和联邦合作伙伴之间共享综合征监测数据存在挑战.
- 美国联邦制使公共卫生分散,造成政府间摩擦,并使数据共享复杂化.
研究的目的:
- 检查不同级别政府之间共享综合征监测数据的具体挑战.
- 识别有效数据共享的政策和关系障碍.
- 为国家公共卫生信息系统提出一个合作框架.
主要方法:
- 分析现有政策及其对联邦获取州和地方综合征监测数据的影响.
- 审查公共卫生数据共享的伦理准则.
- 确定当地环境在解释综合征监测数据中的重要性.
主要成果:
- 目前的政策限制联邦政府在未经同意的情况下访问综合征监测数据,妨碍联邦政府的利益.
- 这些限制与道德公共卫生数据共享指南相冲突.
- 国家和地方机构对于上下文解释至关重要,但合作是有限的.
结论:
- 合作框架对于联邦,州和地方合作伙伴之间有效的数据共享至关重要.
- 这种框架需要一个治理小组,具有重要的州和地方投入.
- 政策护是必要的,以确保适当的数据使用和更新国家公共卫生信息系统.
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