在美国,超越法律框架和安全控制以获取机密调查数据:让数据用户参与数据保护
Amy M Pienta1, Joy Bohyun Jang1, Margaret C Levenstein1
1ICPSR, University of Michigan.
概括
保护敏感的调查数据需要超越法律和技术措施的社会和行为干预. 通过以用户为中心的设计和全面的培训来建立信任对于安全的数据访问和在研究中重复使用至关重要.
科学领域:
- 社会科学 社会科学 社会科学
- 信息科学 信息科学 信息科学
- 数据安全 数据安全
背景情况:
- 科学领域对数据再利用和开放数据的需求日益增加,需要加强对调查数据保密性和受访者隐私的保护.
- 当前的数据保护方法严重依赖于法律和技术控制,但社会和行为干预也至关重要.
- 披露风险因数据类型而异,包括纵向,社交网络,敏感,生物标志物和地理数据.
研究的目的:
- 划分与各种调查数据类型相关的披露风险.
- 检查数据重复使用的动机和数据保护方面的挑战.
- 提出建立对安全数据访问系统信任的策略.
主要方法:
- 对不同类型的调查数据披露风险的分析.
- 审查当前的数据重复使用动机和保护挑战.
- 建议建立信任的策略和一个案例 (研究人员护照).
主要成果:
- 尽管采取了强有力的保护措施,微数据的机密性仍然受到无意违反,违反协议和滥用的威胁.
- 现有的受限数据访问系统往往严重依赖于用户的信任.
- 确定了建立信任的四个关键领域:以用户为中心的设计,促进信任,一般道德培训和特定的安全培训.
结论:
- 有效的调查数据保护需要采用整体方法,整合法律,技术,社会和行为干预措施.
- 建立和维护信任对于安全访问数据和促进负责任使用数据的文化至关重要.
- 持续以用户为中心的系统改进和全面的培训对于应对数据安全挑战至关重要.
更多相关视频
11:21Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
8.2K
15:00Setup of Consumer Wearable Devices for Exposure and Health Monitoring in Population Studies
Published on: February 3, 2023
2.5K
相关概念视频
Ethical Standards I
799
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
799
Legal Guidelines for Documentation
1.3K
The legal guidelines for nursing documentation are essential for ensuring accurate, professional, and ethical recording of patient care. The guidelines are discussed here:
1.3K
Ethical Standards II
663
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
663
Standards of Care II
645
Nurses bear specific legal responsibilities under several federal statutes, including:
645
Guidelines and Strategies for Safe Computer Charting
803
The guidelines and strategies provided by the American Nurses Association (ANA) and the Canadian Nurses Association (CNA) offer essential principles for ensuring safe and secure computer charting systems in healthcare settings. Let's break down each recommendation:
Maintain Confidentiality and Security:
Maintain Confidentiality and Security:
803
Ethics in Research
23.0K
Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
23.0K
