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适应基于家庭的健康体重计划,为白血病幸存的儿童提供健康体重计划

Jessica Jakubiak¹, Megan Guan², Sabir Khan³

¹Department of Psychiatry, Washington University School of Medicine, St. Louis, Missouri, USA.

Clinical practice in pediatric psychology

|April 1, 2024

概括

这项研究通过了解他们独特的需求,适应了儿童急性淋巴细胞白血病 (ALL) 幸存者的家庭治疗方法. 适应性干预解决了幸存者的体重管理和生活方式行为.

科学领域:

儿科瘤学儿科瘤学
健康行为干预干预
幸存者护理幸存者护理

背景情况:

儿童急性淋巴细胞白血病 (ALL) 幸存者经常面临长期的健康挑战,包括体重管理问题.
现有的健康行为干预措施可能无法充分解决儿科ALL幸存者及其家人的特定需求和观点.

研究的目的:

为那些幸存下来ALL的儿童适应基于指导方针的,基于家庭的,密集的健康行为和生活方式干预 (FBT).
了解儿科ALL幸存者及其父母关于体重,行为和生活方式干预障碍的观点.

主要方法:

聚焦小组对9名 ALL 幸存下来的儿童 (8-17岁) 和11名父母进行了调查.
参与者讨论了对体重的看法,与体重相关的行为以及FBT的障碍.
调整是根据"调整和修改增强的报告框架" (Framework for Reporting Adaptations and Modifications-Enhanced,简称FRAME) 的指导.

主要成果:

关键主题包括健康问题,将超重视为保护性,治疗持续的饮食习惯和活动障碍.
干预适应包括虚拟分娩,强调在生存中体重管理,教育晚期影响,结构化的饮食和量身定制的心理社会内容.
具体内容调整侧重于晚期影响,超重/肥胖,结构化饮食,体力活动和对身体的尊重.

结论:

从儿科ALL幸存者和家长的见解对于调整FBT至关重要.
目前正在进行试点试验,以评估调整后的FBT在这个人群中的可接受性,可行性和初步有效性.

关键词:

急性淋巴细胞白血病 (Acute Lymphoblastic Leukemia) 是一种急性淋巴细胞白血病.在FBT和FBT之间.框架框架框架超重/肥胖的人质量上的影响是有质量的.

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