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患有克罗恩病的中国人的症状管理经验:一个纵向描述性定性研究
1School of Nursing, Zhejiang Chinese Medical University, Hangzhou, China.
患有克罗恩病 (一种慢性疾病) 的个人随着时间的推移战略性地管理症状,在预防方面变得不那么警,但在治疗方面更加自主. 这会影响他们的生活质量.
科学领域:
- 胃肠病学 胃肠病学
- 慢性疾病管理 慢性疾病管理
- 质量健康研究 质量健康研究
背景情况:
- 克罗恩病是一种慢性疾病,需要终身症状管理.
- 了解克罗恩病患者症状管理行为的纵向演变至关重要,但不太清楚.
- 这项研究重点关注中国新诊断出克罗恩病的个体.
研究的目的:
- 纵向探索克罗恩病患者的症状管理经验.
- 了解症状披露,预防和治疗行为在12个月内如何变化.
- 为了确定潜在的护理干预措施的症状管理模式.
主要方法:
- 纵向定性设计. 纵向定性设计.
- 针对18名新确诊的克罗恩病患者进行了有目的的抽样.
- 在12个月内进行的半结构面试,使用常规内容分析进行分析.
主要成果:
- 三个主题出现了:战略性症状披露,减少症状预防的警,增加症状治疗的自主权.
- 参与者越来越多地向社会圈子隐症状,并且随着时间的推移,向医务人员披露症状的趋势有所减少.
- 预防症状的勤奋减少,而自我治疗和自我观察的独立性增加.
结论:
- 克罗恩病患者在诊断后的第一年表现出不断发展的症状管理策略.
- 护士可以根据症状管理的时间特征来定制干预措施.
- 有效的干预措施可以减少症状负担,提高克罗恩病患者的生活质量.
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