调查B型肝炎管理和治疗中的生活经验和挑战
Catherine Freeland1, Charles Adjei2, Jack Wallace3,4
1Hepatitis B Foundation, Doylestown, PA, USA. Catherine.Freeland@hepb.org.
数以百万计的慢性乙型肝炎患者缺乏定期护理,在获得治疗和提供者参与方面面临挑战. 患者的意见对于更新世界卫生组织的指导方针至关重要,以改善乙型肝炎的管理和简化护理.
科学领域:
- 肝病学 肝病学是一种肝病学.
- 公共卫生 公共卫生
- 传染性疾病 传染性疾病
背景情况:
- 慢性乙型肝炎在全球影响近3亿人,其中许多人未被诊断并面临患肝癌的风险.
- 世界卫生组织 (WHO) 正在更新其2015年关于预防,护理和治疗乙型肝炎的指南.
研究的目的:
- 确定患者在乙型肝炎临床管理中的偏好,包括护理经验,提供者参与和访问简化.
- 通过以患者为中心的见解,为世卫组织更新的乙型肝炎指南提供信息.
主要方法:
- 一项全球性,匿名的在线调查对560名自认慢性乙型肝炎 (HBsAg阳性) 患者进行了调查.
- 该调查收集了有关当前管理,治疗,提供者互动和护理准入偏好的数据.
- 分析了定性和定量数据,包括对开放式响应的专题分析.
主要成果:
- 不到一半 (49%) 的参与者定期进行肝脏健康检查 (每6-12个月).
- 显著多数 (85%) 希望积极参与他们的乙型肝炎管理和治疗决策.
- 确定的主要挑战包括药物负担能力,获得知识丰富的提供者,以及简化护理途径的需求.
结论:
- 在乙型肝炎的护理,管理和治疗准入方面存在显著的差距,需要在护理连续过程中进行改进.
- 患者报告的挑战凸显了对乙型肝炎的简化临床管理和可访问,知识博的医疗保健服务的需求.
- 研究结果强调了以患者为中心的方法和公共卫生策略的重要性,以提高乙型肝炎的认识,测试和治疗机会.
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