年轻成年人对从儿科到成人护理的过渡的看法
Johanna Forsberg1, Gunilla Lööf2,3, Åsa Burström4
1Karolinska Institutet, Stockholm, Sweden.
Acta paediatrica (Oslo, Norway : 1992)
|April 3, 2024
概括
患有长期疾病和残疾的年轻人经常在过渡到成人护理期间感到被忽视,经历了长期的不确定性和缺乏整合. 医疗保健提供者需要更好地了解这一关键时期.
科学领域:
- 儿科到成人医疗保健的过渡
- 长期疾病管理 长期疾病管理
- 残疾人支持服务服务.
背景情况:
- 越来越多的患有慢性疾病的儿童活到成年.
- 现有的研究强调了从儿科到成人医疗保健的过渡期间的重大挑战和不准备.
- 年轻成年人可能会经历治疗中断和转移后的负面健康结果.
研究的目的:
- 探索年轻成年人在转移到成人护理后患有长期疾病和/或残疾的经验.
- 确定转型过程中的关键挑战和改进领域.
- 了解年轻成年人在这个阶段经历的"边缘"现象.
主要方法:
- 使用半结构焦点组进行定性描述性研究.
- 通过患者组织招募了15名患有长期疾病/残疾的18-25岁的参与者.
- 采访数据采用了传统的内容分析.
主要成果:
- 出现了"边境"的中心主题,其特点是无限期的等待和害怕被忽视.
- 这个主题涵盖了与过渡过程,组织问题,日常生活影响和自我管理相关的经验.
- 参与者描述了他们对护理途径和支持的缺乏清晰度.
结论:
- 在过渡的所有阶段都需要显著改进:准备,转移和转移后.
- 医疗保健提供者经常低估过渡过程的持续时间和复杂性.
- 只有在完全融入成年人护理机构后,这种过渡才被认为是完整的.
相关概念视频
Emerging Adulthood
60
Jeffrey Arnett's concept of emerging adulthood offers a framework to understand the unique developmental stage between adolescence and full-fledged adulthood, generally from ages 18 to 25. This period is marked by extensive exploration and shifts in identity, relationships, and career choices, a process known in psychology as role experimentation. Emerging adulthood reflects the evolving cultural expectations surrounding adulthood and the dynamic process of personal transformation during...
60
Revisionist Views of Adolescent and Adult Cognition
31
A revisionist approach to Jean Piaget's theory of cognitive development has brought new insights that challenge and reinterpret his established ideas. Piaget proposed that the formal operational stage, emerging in adolescence, represents the culmination of cognitive maturity. During this stage, individuals are said to develop abstract thinking, engage in systematic problem-solving, and show a form of egocentrism, believing others are as preoccupied with their behavior as they are...
31
Erikson's Theory on Socioemotional Development during Adulthood
83
Erik Erikson's theory of psychosocial development outlines a series of stages through which individuals progress across the lifespan. Each stage involves a psychosocial conflict that significantly influences personal growth and well-being. Three key stages — intimacy versus isolation, generativity versus stagnation, and integrity versus despair — highlight the developmental challenges faced in adulthood.
Intimacy Versus Isolation in Early Adulthood
Individuals in early...
Intimacy Versus Isolation in Early Adulthood
Individuals in early...
83
Theory of Romantic Attachment in Adulthood
43.4K
Attachment is a long-standing connection or bond with others. While Attachment Theory was conceived in developmental psychology to describe infant-caregiver bonding, it's been extended into adulthood to include romantic relationships.
43.4K
Cognitive Development During Adulthood
96
Cognitive development continues throughout adulthood, undergoing significant shifts across early, middle, and late stages. Individual transition occurs from adolescent idealism to pragmatic and adaptable thinking in early adulthood. During this period, individuals learn to integrate personal beliefs with the recognition that other perspectives are equally valid. Exposure to the complexities of modern society, diverse experiences, and higher education contribute to this adaptive thought process,...
96
Continuing Care
1.5K
Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
1.5K


