患者参与前列腺癌研究的设计和出版:一个范围审查
Linda Sutton1, Matthew Labriola1, Thomas Bognanno2
1Duke Cancer Institute, Durham, NC 27710, USA.
Future oncology (London, England)
|April 4, 2024
概括
患者参与前列腺癌研究是最小的. 一项对112项研究的审查发现,在研究设计或作者身份方面,患者输入的情况很少,这凸显了在癌症研究中需要更多的患者参与.
科学领域:
- 在瘤学瘤学.
- 患者报告的结果
- 临床研究 临床研究
背景情况:
- 患者的见解对于优化癌症治疗方法和改善临床结果至关重要.
- 患者参与可以个性化治疗策略和研究设计,以满足患者的需求.
研究的目的:
- 评估患者参与前列腺癌研究的程度.
- 在前列腺癌科学文献中识别和量化患者的投入.
主要方法:
- 对来自多个数据库和大会的文章进行了关键词集群分析.
- 如果患者在疾病管理方面提供了意见或参与了研究设计,作者或结果展示 (患者语音),则将研究纳入研究.
主要成果:
- 总共有112项研究被纳入了审查.
- 只有11项研究的设计涉及患者.
- 只有在四项研究中,患者被认为是作者.
结论:
- 在前列腺癌研究中,显著缺乏有意义的患者参与.
- 目前的出版物显示,在研究设计和传播中患者声音的证据有限.
- 提高患者参与度对于以患者为中心的癌症研究和改善治疗策略至关重要.
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