COCCOS研究:使用基于经验的共同设计,为患有慢性疾病的青少年开发过渡计划. 一个研究协议
Natwarin Janssens1,2, Lisa Van Wilder2, Ann Van Hecke2,3
1Department of Nursing and Midwifery, University of Antwerp, Antwerp, Belgium.
PloS one
|April 5, 2024
概括
为患有慢性疾病的青少年和年轻人 (AYA) 制定适当的过渡计划至关重要. 本研究使用基于经验的共同设计来创建一个以人为中心的AYA的过渡计划.
科学领域:
- 青少年和年轻人的健康 (AYA)
- 慢性疾病管理 慢性疾病管理
- 医疗保健的转型 医疗保健的转型
背景情况:
- 青少年和年轻人 (AYAs) 需要结构化的计划,以便将护理从儿科转移到成人机构.
- 不充分的过渡计划可能会导致突然的护理转移和负面的健康结果.
- COCCOS研究协议概述了为常见慢性疾病的AYA制定一个过渡计划.
研究的目的:
- 描述开发AYA常见慢性疾病过渡计划的研究协议.
- 在程序开发中使用基于经验的共同设计 (EBCD) 方法.
- 确保在AYA的过渡期护理中以人为中心的方法.
主要方法:
- 这是一项在比利时弗兰德斯进行的定性,参与性研究.
- 涉及AYA (14-25岁) 患有1型糖尿病,喘或肥胖,他们的家人和医疗保健提供者.
- 采用八个EBCD阶段,包括观察,采访,反活动和共同设计研讨会,以Photovoice作为起点.
主要成果:
- 数据收集开始于2023年1月,持续到2024年5月.
- 截至2023年8月,已经完成了15个以上的临床现场观察,20次采访和18名AYA,2名家长和6名医疗保健提供者的招生.
- 该研究正在积极收集AYA和医疗保健提供者的经验数据.
结论:
- 有效的过渡期护理对于减轻AYA的不良健康结果至关重要.
- EBCD方法论将确定以人为中心的过渡计划的关键要素.
- 研究结果将为患有慢性疾病的AYA制定适当的过渡计划.
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