对患有炎症疾病的人群多病症风险的审查:一种定性研究
Lauren Gray1,2, Laurna Bullock2, Carolyn A Chew-Graham2
1Haywood Academic Rheumatology Centre, Midlands Partnership University Foundation Trust, Stoke-on-Trent, UK l.gray@keele.ac.uk.
患有炎症性风湿病症 (IRC) 的人面临其他疾病的风险. 审查应该以个人为中心,并为改善对多种长期疾病 (mLTC) 的护理做好准备,而不仅仅是检查清单.
科学领域:
- 类风湿病学 类风湿病学
- 公共卫生 公共卫生
- 医疗保健管理的管理
背景情况:
- 患有炎症性类风湿病 (IRC) 的人患有诸如心血管疾病 (CVD) 和情绪障碍等并发症的风险较高.
- 在IRC患者中管理多种长期疾病 (mLTC) 在医疗保健提供中提出了独特的挑战.
研究的目的:
- 调查IRC患者和医疗保健从业人员 (HCP) 关于评估咨询的最佳内容和交付的观点,以识别和管理mLTC.
- 了解患者和医疗保健专家对一种新型审查咨询的期望,重点是全面的长期疾病管理.
主要方法:
- 通过电话或在线平台与15名IRC员工进行半结构化采访.
- 与初级和二级保健保健从业者 (HCP) 进行了在线焦点小组.
- 利用对字面转录的数据进行感应主题分析,以确定关键主题.
主要成果:
- 确定了两个主要主题:当前审查咨询的感知价值和未来审查的期望属性.
- 揭示了获得审查的不平等现象,导致IRC患者的护理分散和服务重复.
- 突出了患者在概念化未来健康风险方面的困难,并建议在咨询前做好准备,以使患者和医疗保健专家的议程与以人为中心的讨论保持一致.
结论:
- 对IRC的审查商必须超越肤浅的"tick-box"练习,以提供真正的价值.
- 有效的审查需要患者和医疗保健专家的准备,采用灵活,以人为中心的方法.
- 针对最有可能受益的个体进行审查,将最大限度地提高对管理多种长期疾病的影响.
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