心脏衰竭患者基金会关于研究和患者参与的立场声明
Marilyn A Prasun1, Annette Hubbell1, Lisa Rathman2
1Illinois State University, Mennonite College of Nursing, Normal, IL, USA.
Heart & lung : the journal of critical care
|April 7, 2024
概括
患有心力衰竭 (HF) 的患者应积极参与研究. 在整个研究过程中让HF患者参与,可以改善结果,促进HF科学的发展.
科学领域:
- 心血管研究的心血管研究.
- 患者为中心的结果.
- 医疗服务研究 医疗服务研究
背景情况:
- 心脏衰竭 (HF) 影响全球大约6400万人,代表着重大的公共卫生挑战.
- 由于HF的患病率越来越高,因此需要改进研究策略和患者参与.
研究的目的:
- 倡导HF成年患者积极参与研究.
- 引导HF领导者在整个研究生命周期中整合患者.
- 为患者纳入HF研究制定基于证据的建议.
主要方法:
- 对现有关于患者参与研究的文献进行了全面的审查.
- 在临床研究中分析患者参与的最佳实践.
- 根据收集的证据,HF患者基金会制定建议.
主要成果:
- 医疗保健专业人员,研究人员和资助机构在确保高质量的研究方面发挥着至关重要的作用.
- 将患者纳入研究过程可以提高研究结果的质量和适用性.
- 患者参与可以改善患者及其家人的生活质量.
结论:
- 肝炎患者基金会强烈倡导患者参与所有研究阶段,从概念到传播.
- 患者积极参与HF研究对于改善患者的治疗结果至关重要.
- 整合患者的观点可以促进科学理解和治疗HF.
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