患有单侧声麻的患者的经验:对内幕观点的混合方法研究
Imke Kissel1, Iris Meerschman1, Peter Tomassen2
1Centre for Speech and Language Sciences, Department of Rehabilitation Sciences, Ghent University, Ghent, Belgium.
概括
单侧声麻 (UVFP) 显著影响患者的情感和社会. 了解这些生活经验对于改善以患者为中心的护理和制定有效的应对策略至关重要.
科学领域:
- 耳鼻喉科 耳鼻喉科 耳鼻喉科
- 语音语言病理学 语言病理学
- 心理学 心理学 心理学
背景情况:
- 单侧声麻 (UVFP) 导致严重的听障,影响日常沟通和职业活动.
- 对UVFP对生活质量的影响有更深入的了解,对于以患者为中心的护理至关重要.
研究的目的:
- 探索被诊断患有单边声麻 (UVFP) 的患者的生活经历.
主要方法:
- 25名患有UVFP的成年人参与了这项研究,从语音障碍指数 (VHI),语音障碍严重程度指数 (DSI) 和声学语音质量指数 (AVQI) 获得了定量数据.
- 通过25次半结构面试收集了定性数据,并使用NVivo的感应主题编码进行分析.
主要成果:
- 量化数据显示了平均得分:DSI -1.6,AVQI 3.80,VHI 45.8.8,其中的平均得分为 在VHI和发病后的时间之间发现了正相关性.
- 定性分析确定了四个主题:情绪影响,心理社会影响,身体投诉和应对策略.
- UVFP对情感和心理健康,参与,自我认同和职业活动产生了负面影响. 应对策略包括以问题为中心,以情感为中心和避免风格. 较高的VHI分数与报告的情绪/参与问题以及不接受声音相关.
结论:
- 这项研究强调了UVFP的显著心理社会和情感负担.
- 强调需要在临床实践中为UVFP患者提供专注的历史记录和情感咨询.
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