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在晚期多发性硬化症患者中整合息治疗:一个范围审查
Diana Murteira1, Francisca Rego1
1Faculty of Medicine of the University of Porto, Porto, Portugal.
Annals of palliative medicine
|April 8, 2024
概括
在严重多发性硬化症 (MS) 中,息治疗 (PC) 的整合至关重要. 研究表明,PC有效地减少了症状和护理人员负担,改善了患者的治疗结果,并为未来的服务规划提供了信息.
科学领域:
- 神经学 神经学
- 抚慰性护理医学 抚慰性护理医学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 多发性硬化症 (MS) 的进展是不确定的,最近的指导方针建议在高级阶段提供息治疗 (PC).
- 关于晚期多发性硬化症治疗的决定越来越多地考虑向息方法的转变.
- 了解严重多发性硬化中PC整合对于优化患者护理至关重要.
研究的目的:
- 审查现有的关于重症多发性硬化症 (MS) 缓解护理 (PC) 整合的文献.
- 探索先进成员国对PC的成本效益,最佳时间以及利益相关者的观点.
- 确定影响MS患者PC实施的关键因素.
主要方法:
- 进行了全面的范围审查.
- 在Scopus,Medline (PubMed),ISI知识网络和SAGE数据库中搜索了"多发性硬化症"和"息治疗".
- 包括专注于患者,护理人员和卫生专业人士对PC整合在MS的观点的研究.
主要成果:
- 从158个已识别的文章中,包括了19篇文章.
- 息护理 (PC) 干预措施在严重的MS中表现出有效性,减少症状和护理人员负担.
- 分析揭示了财务影响,未得到满足的需求以及利益相关者对PC集成的看法.
结论:
- 患有严重多发性硬化症的患者需要获得专门的息治疗 (PC).
- 建议采用多学科团队方法,提供有针对性的咨询,以获得最佳的护理.
- 这些发现对为MS患者规划和提供PC服务产生了重大影响.
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