系统性硬化症患者在家监测肺功能时的经验:一种定性研究
Arthiha Velauthapillai1, Gwyn M M Schepers1, Madelon C Vonk1
1Department of Rheumatology, Radboud University Medical Center, Nijmegen, The Netherlands.
Rheumatology advances in practice
|April 8, 2024
概括
对于患有全身性硬化和间歇性肺病 (SSc-ILD) 的患者来说,可以在家中监测肺功能. 患者赋权等感知到的好处超过了缺点,支持其融入医疗保健.
科学领域:
- 肺部医学 肺部医学
- 类风湿病学 类风湿病学
- 数字健康数字健康
背景情况:
- 系统性硬化症 (SSc) 通常导致间歇性肺病 (ILD),需要定期监测肺功能.
- 家庭监测提供了一个潜在的解决方案,用于在临床环境之外持续观察患者.
研究的目的:
- 在SSc-ILD中评估患者在家监测肺功能时的经验.
- 确定这种远程监控方法的感知好处和缺点.
主要方法:
- 与13名SSc-ILD患者进行半结构面试,使用家用螺旋计移动应用程序至少3个月.
- 使用感应性主题分析分析采访成绩单的分析.
主要成果:
- 家庭螺旋测量被认为是可行的,其好处包括增加患者的权力,更好地了解疾病,减少医院访问.
- 缺点包括情绪负担,提高疾病意识,有效性问题以及对数字技能的需求.
- 患者表示愿意继续进行家庭监测,希望继续面对面互动.
结论:
- 肺功能远程监测通常被SSc-ILD患者接受.
- 感知到的好处超过了缺点,这表明成功实施是可能的.
- 一个以患者为中心的策略,解决个人的担忧,对于成功的家庭螺旋计采用至关重要.
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