通过开发和验证一个开源的基于Web的患者决策辅助工具来改善肺癌治疗的共享决策,用于I-II阶段的非小细胞肺癌
Iva Halilaj1,2, Anshu Ankolekar1, Anouk Lenaers1
1The D-Lab, Department of Precision Medicine, GROW-School for Oncology, Maastricht University, Maastricht, Netherlands.
Frontiers in digital health
|April 8, 2024
概括
为非小细胞肺癌 (NSCLC) 患者开发了一个开源的个性化患者决策辅助工具 (iPDA). 该工具受到患者,医生和计算机科学家的高度评价,在参与患者治疗决策方面被证明是有效的.
科学领域:
- 医疗信息学 医疗信息学
- 在瘤学瘤学.
- 卫生沟通健康沟通
背景情况:
- 患者的参与对于治疗的坚持和结果至关重要.
- 有效的患者决策辅助工具 (PDA) 在复杂的医疗情况下支持知情选择.
- 开发可访问的开源工具可以提高医疗保健的可访问性.
研究的目的:
- 开发和评估一个概念验证的开源个性化患者决策辅助 (iPDA).
- 评估iPDA对患者参与的用户友好性,内容和影响.
- 为改善早期非小细胞肺癌 (NSCLC) 患者的 iPDA 收集反.
主要方法:
- 基于国际患者决策辅助标准 (IPDAS) 的iPDA的开发.
- 评估使用40个问题的利克特量表问卷和半结构化患者访谈.
- 对患者,医生和计算机科学家的反应进行描述性分析.
主要成果:
- 超过86%的所有受访群体 (患者,医生,计算机科学家) 认为iPDA有价值.
- 92%以上的受访者认为治疗信息是有用的.
- 该工具激励了患者积极参与治疗决策 (超过91%的受访者).
结论:
- 为早期NSCLC患者开发和测试了一种功能性的开源iPDA,并取得了成功.
- 该iPDA展示了显著的价值和潜力,以提高患者参与治疗决策.
- 改进建议包括增加多媒体和减少文本,以增强用户界面.
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