意识,获取和沟通:提供者对状细胞疾病儿童早期干预服务的观点
Andrew M Heitzer1, Erin MacArthur1, Mollie Tamboli1
1Department of Psychology and Biobehavioral Sciences, St. Jude Children's Research Hospital, Memphis, TN, United States.
缺乏意识,获取问题和沟通不良阻碍了状细胞疾病 (SCD) 儿童的早期干预 (EI) 服务. 解决这些障碍对于改善EI利用和支持神经发育结果至关重要.
科学领域:
- 儿科 儿科 儿科
- 发展心理学 发展心理学
- 公共卫生 公共卫生
背景情况:
- 状细胞病 (SCD) 可以导致幼儿的神经发育缺陷.
- 早期干预 (EI) 服务对于缓解这些赤字至关重要.
- 然而,大量患有SCD的儿童无法获得可用的EI服务.
研究的目的:
- 确定影响SCD幼儿使用EI服务的关键因素.
- 从医疗和EI提供者的角度了解这些决定因素.
主要方法:
- 20名医疗和EI提供者参与的定性研究.
- 通过半结构化的电话采访收集的数据.
- 分析采用了转录的采访的感应主题分析.
主要成果:
- 出现了三个主要主题:意识 (对EI和SCD的知识有限),访问 (服务利用障碍) 和沟通 (提供者和家庭之间的差距).
- 虽然主题是共同的,但独特的子主题源于医疗和EI提供者的不同观点.
结论:
- 改善SCD儿童的EI利用需要解决与意识,获取和沟通相关的已识别的障碍.
- 提供者洞察力提供了增强EI服务采用和支持受影响儿童的潜在策略.
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