令人不安的投诉:通过投诉机制解决与C型肝炎相关的耻辱和歧视问题
Emily Lenton1, Dion Kagan2, Kate Seear1
1Australian Research Centre in Sex, Health and Society, La Trobe University, Bundoora, Victoria, Australia.
Sociology of health & illness
|April 9, 2024
概括
患有型肝炎 (HCV) 的人发现医疗保健投诉流程难以获得和无效,延续了耻辱和歧视. 解决这些系统性问题需要采用集体,结构性的方法,而不是个人解决问题的方法.
科学领域:
- 公共卫生 公共卫生
- 卫生社会学 卫生社会学
- 卫生政策和卫生系统
背景情况:
- 澳大利亚医疗保健机构中与型肝炎 (HCV) 相关的耻辱和歧视是公认的政策问题.
- 现有的投诉机制对于安全和道德的医疗保健至关重要,但它们的有效性和HCV患者的可访问性仍未得到充分探索.
- 了解患者对投诉的体验对于改善医疗保健质量和解决系统性不平等至关重要.
研究的目的:
- 探讨有型肝炎生活经验的人对抱怨耻辱和歧视的观点.
- 分析澳大利亚环境中医疗保健投诉机制的有效性和可访问性.
- 检查影响型肝炎受影响社区投诉流程的机构和文化动态.
主要方法:
- 这是一项定性研究,涉及对30名具有型肝炎生活经验的人进行半结构面试.
- 采访了30位与C型肝炎社区合作的政策,健康,法律和宣传角色的利益相关者.
- 基于理论框架的分析,包括萨拉·艾哈迈德在"投诉! 和研究与毒品相关的耻辱感.
主要成果:
- 具有实践经验的个人认为医疗保健接入障碍是难以解决和难以克服的,投诉机制往往是个性化和轻视的.
- 投诉成功的可能性很低,这会导致C型肝炎患者的耻辱,歧视和不利状况持续存在.
- 尽管人们意识到治疗缺陷,但个人在利用现有的投诉程序方面面临重大障碍.
结论:
- 目前的投诉机制未能充分解决C型肝炎患者所面临的耻辱和歧视的系统性质.
- 需要对投诉进行"扰乱",将其重新定义为需要新的方法的集体,结构性问题.
- 解决与型肝炎相关的耻辱需要系统性改变,而不仅仅是个人投诉解决.
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