为有复杂护理需求的儿童设计电子健康干预措施需要利益相关者的持续合作和共同创造
Liz van de Riet1,2,3, Anna M Aris4,5, Nick W Verouden4
1Amsterdam UMC, University of Amsterdam, Department of Pediatric Intensive Care, Meibergdreef 9, 1105 AZ Amsterdam, the Netherlands.
PEC innovation
|April 10, 2024
概括
改善医疗复杂性 (CMC) 的儿童的医院到家庭 (H2H) 过渡需要协作的电子健康解决方案. 与家庭和医疗保健专业人员 (HCP) 共同设计导致了
科学领域:
- 医疗信息学 医疗信息学
- 患者护理过渡 患者护理过渡
- 儿科医疗保健 儿科医疗保健
背景情况:
- 医院到家庭 (H2H) 过渡对患有医疗复杂性儿童 (CMC) 的家庭和医疗保健专业人员 (HCP) 提出了重大挑战.
- 现有的过渡过程往往缺乏综合支持,导致反应性而不是预期性护理.
- 需要改进电子健康干预措施,在H2H过渡期间支持CMC家庭和HCP.
研究的目的:
- 为CMC家庭和医疗人员深入了解H2H过渡过程.
- 开发和评估电子健康干预措施,以改善H2H过渡.
- 让CMC家庭和医疗保健人员作为最终用户参与代设计过程.
主要方法:
- 这是一个为期20周的协作方法,涉及荷兰过渡期护理单位联盟,医疗保健专业人员 (HCP) 和CMC家庭.
- 利用敏捷的SCREAM方法,在五个代冲刺中整合设计思维方法.
- 采用了持续的沟通,以促进解决方案的快速适应和改进.
主要成果:
- 确定了三个关键领域:护理协调,社会福祉和情感支持,这对所有利益相关者都很重要.
- 开发了一个原型应用程序"我们的护理团队",专门设计用于解决H2H过渡需求.
- 代,协作过程确保了该应用程序满足了CMC家庭和HCP的需求.
结论:
- 适应性干预对于涉及CMC家族的复杂H2H过渡至关重要.
- 通过协作电子健康解决方案赋予所有利益相关者权力,促进了预期的过渡期护理.
- 与最终用户共同设计电子健康解决方案,可以确保更高的相关性和有效性.
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