患者和公众参与炎症性肠病研究 - - 范围审查
Karam Elsolh1,2, Amy Li2, Malini Hu2,3
1Michael G. DeGroote School of Medicine, Faculty of Health Sciences, McMaster University, 1280 Main St W, Hamilton, Ontario, Canada, L8S 4L8.
患者和公众参与炎症性肠病 (IBD) 研究可以增强招聘和生活质量工具. 通过持续的参与和清晰的沟通,解决选择偏见等挑战是以患者为中心的护理的关键.
科学领域:
- 胃肠病学 胃肠病学
- 医疗保健服务研究 医疗服务研究
- 患者参与 患者参与
背景情况:
- 越来越多的人对患者和公众参与医疗和社会护理研究的兴趣.
- 记录的好处包括用户赋权和减少临床试验流失.
- 没有任何先前的审查专门研究患者参与炎症性肠病 (IBD) 研究.
研究的目的:
- 系统地审查和描述患者参与IBD研究的好处,挑战和最佳实践.
- 确定患者参与IBD研究的程度和性质.
主要方法:
- 在MEDLINE,EMBASE和Cochrane数据库中对涉及患者的IBD研究进行系统的文献搜索 (1946-2023).
- 提取关于患者参与研究设计,执行,传播和其他领域的数据.
- 分析参与程度,形式,报告的好处,挑战和建议.
主要成果:
- 在选了9355篇文章后,包括了51项研究.
- 患者参与最常见的是研究设计,改善招聘和生活质量工具开发.
- 常见的挑战包括选择偏见和招聘困难;作者建议持续参与和认知面试.
结论:
- 患者参与对于在IBD研究中推进以患者为中心的护理至关重要.
- 实施认知面试,持续参与和标准化报告可以增强未来的患者参与策略.
更多相关视频
14:43A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
07:38Multimodal Quantitative Phase Imaging with Digital Holographic Microscopy Accurately Assesses Intestinal Inflammation and Epithelial Wound Healing
Published on: September 13, 2016
相关概念视频
Inflammatory Bowel Disease III: Diagnostic Studies and Management I-Nutritional Therapy
Diagnostic studies
A colonoscopy is the definitive screening test, distinguishing ulcerative colitis from other colon diseases with similar symptoms. During a colonoscopy test, inflamed mucosa with exudate ulcerations can be observed, and biopsies are taken to determine the histologic characteristics of the...
Inflammatory Bowel Disease V: Surgical Management
Here are some common surgical interventions for IBD:
Inflammatory Bowel Disease IV: Pharmacological Management
Pharmacologic...
Inflammatory Bowel Disease II: Crohn's Disease
Inflammatory bowel disease, commonly known as IBD, refers to a collection of disorders that lead to persistent inflammation of the gastrointestinal tract. The two types of IBD are ulcerative colitis, which impacts the colon, and Crohn's disease, which can involve any part of the gastrointestinal segment.
Crohn's disease
Crohn's disease is a chronic, systemic inflammatory bowel disease (IBD) that predominantly affects the gastrointestinal tract. It is marked by...
Inflammatory Bowel Disease I: Ulcerative Colitis
Inflammatory bowel disease, or IBD, encompasses a group of disorders characterized by chronic inflammation or ulceration of the gastrointestinal tract.
Risk Factors
The exact cause of IBD remains unclear, although it is believed to be due to a mix of genetic, environmental, microbial, and immune factors. Genetic factors are significant in determining susceptibility to IBD, with family history being a critical risk factor. Individuals with a first-degree relative who has IBD are at...
Chronic Bowel Disorders: Introduction
Irritable Bowel Syndrome (IBS) is a common disorder affecting the gastrointestinal tract. The distinctive feature is recurrent abdominal pain associated with altered bowel movements, manifesting as constipation, diarrhea, or fluctuating between both. The...
