测量患者参与健康研究的影响:使用多种调查工具进行的一项探索性研究
Deborah A Marshall1,2, Nitya Suryaprakash3, Stirling Bryan3,4
1Department of Community Health Sciences, University of Calgary, Calgary, Alberta T2N 4Z6, Canada.
Journal of the Canadian Association of Gastroenterology
|April 10, 2024
概括
患者参与显著影响定性研究设计和进行. 患者研究合作伙伴积极塑造研究问题,方法和数据解释,增强患者为中心.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 定性研究方法 定性研究方法
- 以患者为中心的护理
背景情况:
- 有限研究探讨了所有定性研究阶段的患者参与 (PE).
- 了解利益相关者对PE影响的看法至关重要.
研究的目的:
- 评估患者参与 (PE) 在定性研究中的影响和影响.
- 从患者,研究人员和临床医生的角度评估PE.
主要方法:
- 成立了两个研究小组:患者研究人员领导的和学术研究人员领导的.
- 招募患者研究合作伙伴 (PRP),研究人员和临床医生.
- 在多个项目阶段进行PE评估调查.
主要成果:
- 患者研究合作伙伴 (PRP) 对研究活动产生了重大影响.
- PRP报告了有意义的参与和他们参与的感知影响.
- PRP有助于运营研究问题,研究设计,材料,招聘和数据解释.
结论:
- 联合PE评估工具提供了对PE影响力更深入的见解.
- 专项研究对定性研究设计,过程和方法产生积极影响,增强了以患者为中心.
- 需要更全面的验证工具和PE研究的多样化研究背景.
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